ACB Study of Geographic Atrophy

The American Council of the Blind is collaborating with Global Perspectives, an IQVIA business, which specializes in recruiting patients for scientific studies. They are launching a new non-interventional study on Geographic Atrophy (advanced dry AMD).

The purpose of this study is to understand patients’ views and preferences related to treatments for advanced dry AMD (age-related macular degeneration), also known as geographic atrophy (GA), including some that are in development. No treatments will be administered in this study; we are only interested in opinions. In order to ensure people with advanced dry AMD can participate, a virtual moderator will complete the survey on behalf of participants. The moderator will screen share to show the survey with a large font size, which can be increased, or they can read study materials aloud.

As compensation for your time, you would receive $75 if you are eligible and complete the 40-minute online survey.

If possible, you are encouraged to provide confirmation of diagnosis (e.g., letter from your physician, proof of treatment for GA, or any other documentation confirming you have GA), for which we will provide an additional $50. You can still participate if you do not have a confirmation of diagnosis. We have a letter that you can use to collect this confirmation of diagnosis from your physician.

If you or a loved one has been diagnosed with advanced dry AMD (age-related macular degeneration) and are interested in participating or would like more information about the study, please send an email to bryan.pownall@iqvia.com

Please let the research team know that you have been referred by the American Council of the Blind for this study as we are collaborating on this project.

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